PREDICT-PD has been going since 2011, and during that time we have had around 1,300 participants complete annual surveys, and we have done around 500 in-person assessments all around the UK.
This year we have also started our imaging project, where we are using the PREDICT-PD model with cutting edge MRI and ultrasound techniques to 'see' Parkinson's at the very earliest stages.
We have also been paying special attention to two special groups within PREDICT-PD: people who have lost their sense of smell, and people with a certain kind of sleep disorder. We have been seeing individuals who have been referred to us from specialist clinics, and doing in-person assessments with them to see if we can tease out what features put some people in these groups at increased risk of Parkinson's.
All of this has been taking place while we have been working tirelessly to create a new online platform on which to continue the study. The website has an entirely new design and set up, with a really robust 'back end' to safely and securely store participants data. This has come during the implementation of GDPR, to add to the complexity.
However, the exciting news of the day is that we have officially launched the second phase of PREDICT-PD!! We are now aiming to recruit at least TEN THOUSAND new participants.
So if you have not been part of this journey, please visit www.predictpd.com to find out more, and when you're ready, press 'TAKE PART'. It takes about 20 minutes to register, and go through the questionnaires and assessments. Now is your chance to join in with a truly groundbreaking research study, from the comfort of your own home. If you have already joined us, thank you. Please talk about it with friends and neighbours, encourage as many people as you can to join in. We take all comers (as long as they're between 60-80, and do not have Parkinson's disease (to their knowledge).
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