Tuesday, 11 September 2012

Willingness of Parkinson's Disease Patients to Participate in Research Using Internet-Based Technology


Telemed J E Health. 2012 Sep 6. [Epub ahead of print]
Shprecher D, Noyes K, Biglan K, Wang D, Dorsey ER, Kurlan R, Adams MJ.

Source

1 Department of Neurology, University of Utah , Salt Lake City, Utah.

Abstract

Abstract Background: Motor impairment and travel time have been shown to be important barriers to recruitment for Parkinson's disease (PD) clinical trials. This study determined whether use of Internet-based video communication for study visits would improve likelihood of participating in PD clinical trials. Subjects and Methods: University of Utah PD clinic patients were invited to complete a survey asking if they would be willing to participate in a hypothetical research study under four different scenarios. McNemar's test was used to test the hypothesis that remote assessments would improve willingness to participate. Results: Willingness to participate was 101/113 (87%) in the standard scenario. Willingness to participate was highest (93%; p=0.046) with most visits occurring via telemedicine at a local clinic, followed by some visits occurring via telemedicine at a local clinic (91%; p=0.157). Willingness to participate was lower with some (80%; p=0.008) or most (82%; p=0.071) visits occurring by home telemonitoring. Conclusions: Use of telemedicine may be an acceptable means to improve participation in clinical trials. This would need to be confirmed with the use of a larger-scale inquiry involving rural populations. Future research should assess subject or caregiver comfort and trainability with respect to computer-based technology in the home and systems barriers for wider implementation of telemedicine in neurology.

1 comment:


  1. Everyone lies to their doctor at some point. Though the reasons that patients lie are complicated, it is an inescapable fact that your doctor can only do his job if he has the right information. It can sometimes be difficult and embarrassing to tell the truth, but your doctor will be happy with your honesty, and will be better able to help you
    talk to a doctor

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